1 2 3lbs
Jemma has finally broke 3lbs!
At some point last week I realized I was comfortable in the NICU and it was starting to feel a little cozy. We are blessed that our NICU provides completely private rooms. This allows us be a little family in peace and quiet. Jakin and I try to be as hands on with her care as possible. I graciously let Jakin change her poopy diapers so he can have more time with her. >.> We have been doing a lot of commuting so it’s been difficult to keep the blog updated.
Jemma had a few days where the only machine she was hooked up to was her feeding tube. Alas all good things must come to an end. She now needs a pressure cannula it’s not helping her breath but it keeps her air ways open. The Doctors stopped her caffeine, because of that she has been going bradycardic, which is very alarming for the parents. We have to readjust her position and make sure her chin isn’t tucked in etc. Right now Jemma is just starting to learn suck, swallow and breath. If she is sucking on her pacifier she might forget to breath.
A few days ago she was cleared to start taking a bottle. In the words of her nurse she is not "an overachiever" at it. Aka she’s struggling, but it’s normal for her to struggle. I am trying very hard to remember even though she is tiny she is still 34 weeks and needs to learn the skills that are developmentally appropriate for her.
Last week neurosurgery stopped by and took a look at her scans and head. As of right now Jemma won’t need brain surgery. Blood out side the veins is very caustic and can keep the ceberal spinal fluid from draining. In turn if the CSF doesn’t drain, then her head will swell. Thankfully her head is growing perfectly. Her brain is showing some tissue death which is to be expected. We won’t know the extent of the damage or the effects for months, or even years.
Right now we have a happy heathy baby girl who growing, learning and showing her goofy parents what a human body is capable of. We are blessed and in awe of her. She is our sweet miracle from heaven and we think that she is absolutely perfect. Right now is an amazing time for children with special needs With the knowledge, programs and therapies out there, Jemma will have every chance and opportunity to do or be anything she desires, and that’s all we ever wanted for her. Thank you friends for reading this, supporting us, praying and loving our sweet sweet peanut!
At some point last week I realized I was comfortable in the NICU and it was starting to feel a little cozy. We are blessed that our NICU provides completely private rooms. This allows us be a little family in peace and quiet. Jakin and I try to be as hands on with her care as possible. I graciously let Jakin change her poopy diapers so he can have more time with her. >.> We have been doing a lot of commuting so it’s been difficult to keep the blog updated.
Jemma had a few days where the only machine she was hooked up to was her feeding tube. Alas all good things must come to an end. She now needs a pressure cannula it’s not helping her breath but it keeps her air ways open. The Doctors stopped her caffeine, because of that she has been going bradycardic, which is very alarming for the parents. We have to readjust her position and make sure her chin isn’t tucked in etc. Right now Jemma is just starting to learn suck, swallow and breath. If she is sucking on her pacifier she might forget to breath.
A few days ago she was cleared to start taking a bottle. In the words of her nurse she is not "an overachiever" at it. Aka she’s struggling, but it’s normal for her to struggle. I am trying very hard to remember even though she is tiny she is still 34 weeks and needs to learn the skills that are developmentally appropriate for her.
Last week neurosurgery stopped by and took a look at her scans and head. As of right now Jemma won’t need brain surgery. Blood out side the veins is very caustic and can keep the ceberal spinal fluid from draining. In turn if the CSF doesn’t drain, then her head will swell. Thankfully her head is growing perfectly. Her brain is showing some tissue death which is to be expected. We won’t know the extent of the damage or the effects for months, or even years.
Right now we have a happy heathy baby girl who growing, learning and showing her goofy parents what a human body is capable of. We are blessed and in awe of her. She is our sweet miracle from heaven and we think that she is absolutely perfect. Right now is an amazing time for children with special needs With the knowledge, programs and therapies out there, Jemma will have every chance and opportunity to do or be anything she desires, and that’s all we ever wanted for her. Thank you friends for reading this, supporting us, praying and loving our sweet sweet peanut!
Thank you for the update. I'm so thankful she progressing and for modern medicine. She is adorable. You guys are doing awesome. I know this is quite a challenge because of being exhausted, worried, new information, learning to care for her, etc. But God gave her to you because he knew how much you love her and would be great parents through all the storms. Keep up the good work, Mom and Dad. Praying for you and Miss Jemma. You are all loved.
ReplyDelete